TikTok star Brooke Eby used dark humor to strip the stigma from ALS, dies at 37, the community she built is now carrying her loudest message forward

Brooke Eby, the TikTok star known for sharing her journey with ALS (or Lou Gehrig’s disease), has passed away at the age of 37. Eby was diagnosed with the illness in March 2022, though her symptoms started four years prior, and she began posting videos on TikTok just months after. She soon gained hundreds of thousands of fans on TikTok and Instagram.

The ALS Network shared the news of Eby’s death on October 1st, with a statement remembering her for the ways she built community and helped create connections through her videos and other work.

Eby changed how ALS is viewed

Per reporting by People, Sheri Strahl, President and CEO of ALS Network, said of Eby: “Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another[…] Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another.”

Brooke did that by approaching ALS in a comedic and light-hearted way in her videos. She reportedly began posting on TikTok to help make the process of telling others about the diagnosis easier. As she explained in an essay written for People, “Everyone was a lot more comfortable with my situation when I was laughing, and that came back around to make me feel more comfortable too.”

Her content wasn’t only meant for a laugh, though. Eby also made educational videos to raise awareness about her disease (much like Michiel Vandeweert did), its progression, and how everyone with it is affected in different ways. She also wanted people to know that this disease didn’t discriminate by gender, age, or any other demographic, and it could affect anyone.

Eby’s condition began worsening in mid-2025

In June 2025, Eby posted an update to let her followers know that her breathing capacity had declined significantly and she now had a feeding tube in her stomach. In January 2026, she updated that she had started having bulbar symptoms, which affect the ability to swallow and speak. According to her, while she wasn’t slurring much, the ALS had made communication more difficult.  At the beginning of September 2026, Eby posted again, saying her speech had quickly deteriorated, and people were having a much harder time understanding her.

Marc Benioff, CEO of Salesforce, where Eby worked for a decade, posted a tribute to her on X. He said, “I am just devastated to hear of the passing of Brooke Eby @limpbroozkit. Brooke was an amazing warrior with an attitude so positive it could melt a glacier. All of my thoughts are with her Ohana at this time. May the One who brings Peace bring Peace to All.”

The ALS Network also ended their statement with a touching tribute: “Brooke once promised she wasn’t getting quiet. She hasn’t. Her voice lives on in the people she inspired, the community she created, and the movement she helped shape. We will miss her deeply. And we will carry her legacy forward.”

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